“When I have a brand new hairdo
With my eyelashes all in curl,
I float as the clouds on air do,
I enjoy being a girl!”
–Flower Drum Song, Rodgers & Hammerstein
“I Enjoy Being a Girl” makes me want to stab Rodgers and Hammerstein.
Disclaimer
This post is about girl stuff. Periods. Irregular menstrual bleeding. Diagnosing and treating a woman – me – when her lady parts don’t want to work properly. Why open up about the embarrassing topic of my period? I am willing to bet there are other girls out there who have/are/will experience something similar. We didn’t learn about female troubles in health class. I figured my mom had told me all she could on the topic. The thought of seeing an OB-GYN can be daunting. It’s embarrassing to talk about periods because that’s what we have been taught.
Here’s hoping I can help change that, if only a little.
Sometimes being a woman is just too awesome to contain. That’s why we bleed.
The Plan
As a little girl, I had a plan: I would study marine biology in college, where I would meet my future husband; we’d marry after graduation, then I’d go on to study orcas and live in Seattle and possibly also have a second career as a singer/songwriter/pianist, and we’d have a few kids; also, I’d have a whole room in our home dedicated to books/music.
Believe it or not, that is not how my life turned out. Not even close. Not remotely.
I made the decision to pursue an English degree, once I realized I loved telling stories. I chose a school much closer to home in Wisconsin (although I was able to visit schools out in Seattle and I did fall in love with that area). I made great friends in college and met lots of people, but not my future husband. Graduation did not bring a career with orcas. This is still a sore point with me, to be honest…
It’s a Girl Thing. Period.
But where things first started to derail for me was puberty. (I know, happens to a lot of people!) Getting your period is this magical, mystical right of passage for girls. Sometimes being a woman is just too awesome to contain. That’s why we bleed.
They tell you what’s “normal.” But everyone is different. I got my period. Then I didn’t get it. Then I got it and it stuck around. I asked my mom if there was something wrong with me. Her response was “I didn’t have a normal period until after I had a baby.” (Sorry for the overshare, Mom!)
Great. So I’m in middle school with an erratic period that won’t be normal ’til I have a kid. And it’s not the least bit magical. Awesome.
Fast forward a few years and I’ve settled into my body’s clearly abnormal cycle: four to five periods a year, every two to three months, each lasting about a month. Minimal cramping, so yay me?
You read that right. A month-long menses was my norm. I was also lucky because the flow was heavy pretty much the whole time. We’re talking can’t-wear-tampons-need-the-overnight-pads heavy. And this less than popular high schooler had more than one mortifying “incident” that resulted in me wearing my jacket tied around my waist for the remainder of the school day. At least that look was still sort of in.
During my senior year things changed again. It wasn’t one month…it was three. And there were no signs of it stopping. My best friend told her mom – a nurse – and she called my mom. I would have to see one of those doctors. But I just wanted it to stop, so we set up an appointment with a female doctor to make it slightly less awkward for me.
This doctor was terrible. I just want to get this out of the way. She was accusatory, refused to believe what I told her, wouldn’t answer questions or provide information, and prescribed birth control without explaining why (or that I would need to continue taking it once the prescription ran out).
So…birth control pills shortened the periods and made them happen on schedule. That was weird for me. But also an amazing relief. I knew what it was to be “normal” for once in my womanhood.
Until I stopped. After a year my prescription was done and I was glad to be done. Who wants to take a pill every day? And birth control pills always gave me morning sickness, which was…well, it was weird. So I stopped when my last pack ran out.
And then my body stopped.
Six months. Six long months. Nothing. Overly emotional newly minted college sophomore me even wrote a poem to “my unborn child” that I would never have because my body had clearly decided to shut down. (Don’t judge. You had a melodramatic phase too. Mine was just longer.)
But eventually it started again. And eventually it got bad again. Senior year of college I began getting terrible sharp pains that felt a lot like being stabbed repeatedly in the lower abdomen with a serrated knife. I shuffled around like an old man and couldn’t sit or stand without bracing myself. I missed a lot of class. Time to see a doctor again, in spite of my harrowing first experience.
Diagnosis
By the time I was done, so many doctors and techs had seen my nether regions that I honestly wouldn’t have cared too much if they held a party in the exam room. A family doctor referred me to a specialist; the specialist sent me for an ultrasound – where I discovered they don’t put it on your belly like in the movies; in going over the results of my ultrasound, the specialist insisted on performing another transvaginal ultrasound while he was there to confirm.
PCOS. Four letters. Polycystic Ovary Syndrome. I had cysts covering my ovaries, like strange gremlin pods waiting to burst open and wreak havoc. (Clearly I should NOT have fed them after midnight!)
But suddenly everything started to make sense. PCOS causes cysts in about 50% of women who have it. Common symptoms include: irregular periods, excess body/facial hair, difficulty getting pregnant, being overweight, difficulty losing weight. I’d never tried to get pregnant, but otherwise it all sounded pretty familiar.
And wouldn’t you know it…birth control is the most common treatment, because PCOS is actually a thyroid condition, which means it stems from a hormonal imbalance. It’s treated with hormones.
THANKS FOR TELLING ME THAT, ACCUSATORY FIRST OB-GYN DOCTOR I SAW BACK IN HIGH SCHOOL!!
I’m over it. She’s not my doctor anymore. I learned a valuable lesson, though: if your doctor isn’t giving you the answers you need, find a new doctor. After college I met an OB-GYN who told me with a straight face that cysts don’t hurt. I never went back to him.
Treatment
Because PCOS is all about regulating hormone levels, my prescription has been adjusted from time to time. I even chose to go off of meds altogether for a few years to see if my body could regulate itself. And it did, for awhile. Then it didn’t. Then I needed meds again.
The doctor I see now is wonderful. She walks through every option’s pros and cons. And she acts like she loves when I bring her more questions. I see her more often than I see my bestie. Her nurse and I talk on the phone a lot.
We’ve exhausted birth control pills as an option. My body decided I was done with those and just kept bleeding. Next I tried the NuvaRing, which worked for maybe six months. Then I kept bleeding. My doctor was getting frustrated with my uterus, which clearly didn’t want to cooperate.
Last September, nothing was working. An ultrasound revealed that I would continue bleeding indefinitely unless I got a surgical procedure to clear it out. My doctor talked me through everything and I went in for the surgery.
After surgery, we decided to give the depo Provera shot a try. Because I was still bleeding. Some women don’t get periods at all on the shot. That sounded wonderful! Many women who start the shot gain weight. Not so cool, but I’d run out of options at that point so…
The Joys of Womanhood
I tried to love the depo. I tried. In the nine months I was on the shot, I gained about twenty pounds – mind you, this was after a four-year battle to lose 60 pounds, so I was beyond frustrated. The cramps were terrible. And, after six months, the constant bleeding returned.
So my doctor and I met again. She hates my uterus. If I was five years older and had a couple kids she would’ve ripped it out by now – her words. Instead, we opted for the Mirena IUD. The insertion procedure was incredibly painful and took at least a month for recovery, but then it was supposed to fix everything. FINALLY.
And then the familiar stabbing pains returned. The cysts came back with a vengeance. Because my body has not wanted to work properly since puberty.
I recently had a cyst on my left ovary grow to the point of incredible daily stabby discomfort and then (I think) burst. So that was fun. I am now on a low dose birth control pill in addition to my IUD to help curb the production of cysts.
The Takeaway
I had planned so much for my life. True, there have been some beautifully wonderful surprises and changes to that plan. I’m grateful to be who I am, where I am now, with the people I love.
I am not my uterus. I am not my left ovary. I am not my thyroid.
But what I refuse to accept any longer is for this one softball-sized organ and its cronies to rule my life. I mean that. My PCOS and my excessive bleeding/cysts/cramping have caused missed days from work, distraction from work while I’m there, frustration boiling over into personal relationships, added stress, lack of sleep, concern for overall health…and the list could go on.
I am not my uterus. I am not my left ovary. I am not my thyroid. I am a whole person (minus my gallbladder and adenoids). I may not have my Seattle home with a library featuring that Steinway rosewood baby grand – yet. I don’t work with orcas, I work in an office. But there’s orca pictures on my computer. And the handsome guy in that picture frame next to my computer is pretty great for having stood by me these last two years while I’ve struggled against my own body. I want my life to be the focus of my day-to-day, not pain or a health problem.
I am still working to get answers. I don’t know if the IUD plus pills will work. I know it’s not a permanent solution, and at some point I’ll need to have my uterus and/or ovaries removed. I don’t know if I’ll ever have children. This, far more than the orcas or the library, breaks my heart. Being “defective” sucks.
But there is hope. Hope in the solutions for now. Hope that better answers will come. Hope that someone buys me that Steinway…
And hope that the girls first learning how puberty transforms their bodies are better informed, encouraged to seek answers, and have doctors who address their concerns while treating the whole person.
Seriously though, let’s talk about that baby grand. And orcas. Right after I take my pill…